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We know that patients and families with rare diseases like Creutzfeldt-Jakob disease, who do not know the cause and cure, are fighting with the horror of the disease and the disease. surrounding eye. I also talked about patients who were denied admission to 40 hospitals and who eventually died. But the government also points out that the disease is virtually neglected.
It is reported by Kim Ji-aa.
In the case of this disease,
The age of sporadic CJD patients experienced by the JTBC reporter was 58, and it took four months of diagnosis to death
This is similar to the average age of sporadic 60-year-old CJD.
In the last seven years, patients have been reported as patients suspected of Creutzfeldt-Jakob Disease in Korea
.
However, the JTBC obtained data on patients suspected of having CJD,
Some of them survived for more than nine years.
The epidemic of the disease in the elderly
The problem does not stop there.
In order to identify CJD, autopsy
[김상윤/서울대병원 신경과 교수 : 부검해서 확진해야 하는데 우리나라는 그 시스템이 없으니까, 지금 이게 얼마나 정확하게 진단이 되고 있는지 아무도 자신할 수 없죠.]
In fact, only one or two autopsies performed at the CJD autopsy center in Korea are confirmed each year
In the meantime, the Department of Health and Welfare
[김현권/더불어민주당 의원 : 국가가 (CJD 환자의) 치료비나 입원비를 부담하고, 사후 뇌를 기증받아서 연구하는 방안도 검토해봐야 합니다.]
Patient anxiety widens with government policy going up and down [19659002] (video-design): Kim, Chung Hyun)
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