Hayley Wyatt suffered the most painful condition on Earth
Health
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BRAD FLAHIVE
Last Updated 05:00, 15 July 2018
DOMINICO ZAPATA / STUFF
Hayley Wyatt was only 21 years old when she died of complicated regional pain syndrome complications.
The family of a young woman who died earlier this year said that the medical team who cared for her had neglected her. They say that she would have received better treatment if the staff knew more about complex regional pain syndrome – the most painful condition on earth. Brad Flahive reports.
Hayley Wyatt's last words in this world were "Mom, Mom". She was sitting on the couch and calling for help.
Then there was a break. She said "mom" one last time.
Charlotte Wyatt could not do anything to help her.
She watched helplessly as her daughter died of disease-related complications that experts say is the most painful in the world. She called an ambulance – it took 10 minutes to arrive. When they finally arrived, the paramedics rushed the family outside while they were trying to shake Hayley to life with a defibrillator.
"When they came out and told us that she was dead, we fell to the ground and since then I've had a gaping hole."
Hayley spent the last four years of her life fighting the Complex. Regional Pain Syndrome (CRPS) – a chronic disorder of the nervous system that can be more painful than childbirth.
DOMINICO ZAPATA / STUFF
] Hayley Wyatt died at age 21, her family thinks she could have been avoided.
The McGill Pain Index considers it more agonizing than the amputation of a finger or toe without painkillers
The CRPS is an invasive neurological disease that makes the nervous system irregular and sends signals to a member who is in the acute phase. the pain when she is not there.
If the condition is not detected early, it can often be incurable and the intense pain causes such frustration, anxiety and depression. It has also been called a "suicidal disease" by those who suffer from it.
Hayley lived with this disease until his death in January of this year. She was 21 years old.
His distress began after what seemed like an innocuous accident in 2014: slipping on a puddle of water and injuring his arm.
Wyatt says that Hayley's initial treatment worsened the situation and left his arm bruised and beaten.
"We were given the solution, and it was a year before she was diagnosed with CRPS."
This would be the beginning of a frustrating relationship with health professionals and VAC. It has spread to Hayley's leg, causing painful open sores that have been infected.
"She was so scared to go to the hospital because she knew how she was going to be treated, that she was sometimes treated worse than an animal. sick."
Charlotte Wyatt filed a complaint with the Bay of Plenty District Health Board and VAC.
The Wyatt family filed a complaint against the Board of Health of Plenty Bay, 35
The official complaint includes allegations that Hayley was denied entry into a pathology lab because his leg was "flowing too much" and that a nurse told him that his "leg stinks".
In response, the Bay of Plenty DHB stated, "We are working with Hayley's family shortly after her death to understand and respond to their concerns about the care she received and we continue to make."
his life, pai n was at its worst. But Hayley has not been the subject of a pain review, although the Wyatts have "begged" Hayley's medical team. "
DHB has since admitted to the family that Hayley had not been the subject of a pain review." 19659007] "And now they say, & # 39; oh, sorry, she fell in the holes & # 39 ;. This is not enough, she should not have died.
On Wyatt's wrist, she contracted CRPS when she was 17 years old. Over the next four years, she spread to her leg.
Hayley needed a constant supply of bandages to evacuate the three liters of fluid that flowed each day. bad dressings meant that she was waiting months to receive good care – the correct dressings arrived only a few days before her death.
"We had to chase the doctors for the prescriptions, and then chase the VAC to sign it. Her care and medications were constantly delayed and it could have been different for Hayley had they helped her earlier, "her mother said.
" We have advocated for more care before Christmas, but we were told it was the holidays and "
VAC paid $ 10,000 for Hayley's funeral and made a check for $ 25,000 to the family to make up for the care of 24 hours they lavished on him during his last months
![Hayley and his mother Charlotte. 19659044] DOMINICO ZAPATA </span>
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Hayley with his mother Charlotte
ACC had funded the home help and personal care for Hayley, but the family insisted that they needed to have a good time. additional support.
the amount of assistance has been increased. Unfortunately, Hayley died shortly after. We have agreed to postpone overtime to November of last year and to pay the family money, "said a spokesman for ACC
. equipment, housing modifications and nursing care, as well as the important contribution of the DHB Unfortunately, Hayley often resisted the fact that nurses and health professionals visited him at home and, when she saw them, she did not often follow their care recommendations
"It affected our ability to provide the required level." Having to treat her leg injuries when she was at home and to ensure that she regularly received the large number of dressings she needed, as these were to be ordered by a registered nurse. "
But Wyatt says Hayley was resistant because l & # 39; nurse , contracted by HealthVision VAC, had no knowledge of CRPS
"She did not know about Hayley's suffering. She still hit his leg, wiped it too hard, and put the bad treatment on it. "
" One time she tried to hunt a fly near her naked leg and hit her with a pamphlet in the process. It's no wonder she wanted care different because it was an agony for Hayley. "
HealthVision told the Wyatt family in a letter of apology that" CRPS is so misunderstood by health professionals ", his death would serve "to educate and educate the wider team of community nurses." [19659007"Ellen"wouldnothavedied"saysWyatt"Jeneveuxpasquesomebodyelsebecausehehasavonstrated"
She thinks that they could have given Hayley better treatment if they knew more about the disease. "Nobody knows anything about CRPS."
Before she contracted CRPS, Hayley was an extrovert who loved to explore and spend time with his family.
"She had such a good heart, but she e would also like it in the wrong, "says Wyatt. "I recently discovered she wagged the school several times so that she could hang out with her older sisters.
"It's a chance she did it because after CRPS, it was like a prison, she was so hurt. 19659053] Although she lived with excruciating pain, Hayley was studying early childhood and spent a lot of time researching the disease by creating videos on YouTube for a national awareness group
"She was determined to beat her ".
Wyatt hopes his complaints will lead to better treatment for Kiwis living with CRPS
"I think DHB is going to do a study on CRPS, but it should not have to be a death before to do that." 19659007] "It's the hardest thing I've done in my life, but I know Hayley would like her story to be told."
"We want professionals to recognize their mistakes because I do not want others through what it has gone through."
O TO GET AID
* In case of emergency: call 111 [19659007] * Lifeline: 0800 543 354 (available 24/7)
* Suicidal Crisis Assistance Service: 0508 828 865 (0508 TAUTOKO) (available 24/7)
* Youthline: 0800 376 633 or text 234 (available 24/7) or [email protected] or live chat (between 7pm and 11pm) http: / /livechat.youthline.co.nz/mibew/chat?locale=en&style=youthline
* Kidsline: 0800 543 754 (available 24/7)
* Whatsup: 0800 942 8787 (13: 00-23: 00)
* Phone support service: 0800 111 757 (available 24/7)
* Samaritans 0800 726 666
* Healthline – 0800 611 116
* For more information on l & # 3939; assistance and services available to you, contact the Servi This free resources and information from the Mental Health Foundation at 09 623 4812 during office hours or by email at [email protected].
– Sunday of the times of the stars
