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Jess Davenport-Lee's heart could stop beating anytime
The 24-year-old of Auckland is largely confined to the house these days, taking a defibrillator with her whenever She managed to go out and must have some one
Her only hope of normal life is a heart and liver transplant that she has been waiting for 14 months.
This is an operation practiced only twice in New Zealand since 2011 and Davenport-Lee believes that it will be the first time that someone has had a heart completely "replete" as she does. ;did.
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Davenport-Lee was born with six cardiac conditions: a double-entry left ventricle, a right hypoplastic ventricle, an atrial septum, a ventricular septum, a transposition of the large arteries and leaking valves.
In short, she had only one half of her heart to which the main arteries were connected as well as a number of holes in the walls between the chambers.
She was diagnosed at the age of 3 days. 5 months, her second just before she was 3 years old and the next when she was 6 years old.
She was a normal and healthy girl for the next 10 years but "everything rocked" when she reacted badly she needed a pacemaker implanted at the age of 18 [19659011]. The next four years were difficult and in 2016, she needed additional cardiac surgery – a last ditch effort before resorting to a transplant. liver disease too, a side eff Jessica Davenport-Lee has had many surgeries on her heart and now needs a liver and heart transplant. Photo / Provided "src =" data: image / png; base64, R0lGODlhAQABAPAAAOrq6v /// yH5BAAAAAAALAAAAAABAAEAAAICRAEAOw == "data-srcset =" // www.nzherald.co.nz/resizer/netnbPilxlNvHHUaeDyqIo7lRw8=/320×427/smart/filters:quality (70) /arc-anglerfish-syd-prod-nzme.s3.amazonaws.com/public/COQ2Y3432JHNNOU5HOMTOR2VZ4.jpg 320w, // www.nzherald.co.nz/resizer/SsNrxAWT2drpJ_RRZoBQDRlvK1A=/375×500/smart/filters:quality ( 70) /arc-anglerfish-syd-prod-nzme.s3.amazonaws.com/public/COQ2Y3432JHNNOU5HOMTOR2VZ4.jpg 375w, // www.nzherald.co.nz/resizer/BQBEtu-9VFYvQ_i_d5QhYy0HDwg=/620×827/smart/filters:quality (70) /arc-anglerfish-syd-prod-nzme.s3.amazonaws.com/public/COQ2Y3432JHNNOU5HOMTOR2VZ4.jpg 620w "/>
After that, she and her partner Troy Lee Fesola & # 39; i have called for help to arrange a wedding together prior to the transplant. 19659002] The community s & # 39; is collected and donated money and services to give them a day. would never forget.
In April of last year, a month after the wedding, Davenport-Lee was accepted on the transplant list and she has been waiting patiently ever since.
But things have become more difficult in the meantime. She is on the brink of liver failure and has episodes of ventricular tachycardia where her heart beats too fast. This usually happens before a heart is left in cardiac arrest, but until now, Davenport-Lee has been lucky.
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That's why she must always have a defibrillator with her and can not be left alone. Her family now has a list of people who will watch her.
Davenport-Lee can feel her heart weaken – she can barely get to the mailbox or get dressed and put on makeup without getting tired and out of breath.
"I can not do anything other than wait for my transplant appeal," she said.
It is exceptionally rare to have a double transplant – only five last year – not to mention such important organs. 19659002] A spokesman for the Auckland Regional Health Council said the average wait time for a single heart transplant was about nine months and three to six months for a liver, but it could be much longer for a double organ donation. has remained remarkably positive despite everything but admits mixed feelings about the transplant.
"It's really sad [that someone has to die] and it hurts so much but I know, the person who dies, I did not cause their death."
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While she is stuck at home, she documents her ups and downs on Facebook for her 3,500 followers.
"I document everything on my heart page not only for donor awareness but also for heart disease. invisible disease.
"We do not look sick, we can put on makeup and we look perfectly fine Nobody knows that I have a cardiac defibrillator in my bag handbag or purse full of pills. "
Meanwhile, friends have created a Givealittle page to help the sister and her four nieces and nephews Davenport-Lee to come from Australia
Donations Organs
• The number of deceased organ donors is increasing steadily each year, from 36 in 2013 to 73 last year
• Last year, there are had 187 kidney transplants, 24 heart transplants, 20 lung transplants and 55 liver transplants
• There were also 227 tissue donors who died last year who gave skin, heart valves or eyes. [19659032]
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