"Putting on fire": The rare condition that burns the victim from the inside



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WARNING: GRAPHIC IMAGES

A woman struggling with an agonizing illness called "suicidal illness" claims that her body burns from the inside.

Kayla Hansen, of Arizona, was informed by her doctors that she has the worst Complex Regional Pain Syndrome (CRPS) ever seen.

Most people suffering from this misunderstood malady experience disabling pain, which can have the impression that they are burned, stung or stabbed.

But for Ms. Hansen, who is She is no longer able to drive or even wash her hands, her skin is actually blistered, what she calls burns, because of CRPS, reports the MailOnline.

29-year-old life was "upset" Ms. Hansen told Barcroft TV, in a new interview, its presence at the door of a car that had started three years ago: "CRPS is a condition in which your nervous system attacks your entire body.

" In some people, it will be limited to an arm or ototomy or a leg. In my case, I have a complete body shape

"It is considered the most painful disease in the world, it is superior to any amputation, it surpasses natural childbirth, any bone fracture, more painful as cancer.It is nicknamed "suicidal disease" because so many people commit suicide that it has been diagnosed. "

She added," I feel from head to toe that someone thrown gasoline and put me in the trash compactor. "

Ms. Hansen has stage four SDRC, which she describes as the worst form "absolute" of the misunderstood state that patients can get.

She said, "On a scale of 1 to 10, my pain SDRC most of the time is a 10 and c & # Is with my medication

"I could be lucky a few days and it goes down to nine or nine and a half, but it never goes below. "

  In just two years, Ms. Hansen went on to have the CRPS in her arm and her right hand all over her body - even her scalp (photo: blisters on her arm). Photo / Facebook / Kayla Hansen
In just two years, Ms. Hansen moved from the CRPS in her arm and right hand to her whole body – even to her scalp (photo: blisters on her arm). Photo / Facebook / Kayla Hansen

In just two years, Ms. Hansen moved from the CRPS in her arm and right hand to her entire body – even to her scalp.

She uses a cream designed for people in radiotherapy.

Ms. Hansen said, "When I had it right in my right hand and my right arm, I was able to use it"

"But now I can not I can not really do anything on my own, I can not even wash my hands. "

The former restaurant manager was concerned that she was in need of safety. 39. Absent from work when she broke her two-door hands in December 2015.

She had "no idea" that it would change her life forever.

A year after the incident, Ms. Hansen had burns in her arms and went to the hospital to seek medical help.

Doctors did not believe the burn was occurring 39, inside, until they see up close

They claimed that she had the CRPS, which was believed to affect about one in 4,000 people. [19659003] Recalling his diagnosis c, she said: "I was in shock at first, I do not have" I mean, he said it would affect my life every day, but I did not know to that moment that it would stop me completely. "

Ms. Hansen quickly passed from an independent and sociable young woman to another She said," I went from running an Italian gourmet restaurant and working 60 to 80 hours a week until now, literally, I can barely get out of bed.

"When I'm at home, I'll stay in bed for three to four days at a time because every joint in my body hurts me , every muscle, every bone, every nerve ending. "the way I eat the way I have to live, I have to depend on my mother for everything."

Ms. Hansen continued: have more independence and this is probably the most difficult part. "

  Kayla Hansen She was informed by her doctors that she had the worst case of Complex Regional Pain Syndrome (CRPS) never seen (on the photo before she was diagnosed with CRPS). Photo ./ Kayla Hansen / Facebook
Kayla Hansen was informed by her doctors that she had the worst case of Complex Regional Pain Syndrome (CRPS) ever seen (photo before she was diagnosed with CRPS) ). Photo ./ Kayla Hansen / Facebook

Stress, water and heat are the three main triggers of CRPS.

She said, "If I am stressed, I experience terrible pushes on my arm. and then I also get burns all around my face and up to my chin.

"Whenever I take a bath, even if I have help, wash my hair and other things, I will still burst with many burns

" In the heat, I could not have burns for about three days. Three days is probably the longest I went without burns last year.

Because Ms. Hansen was working in Arizona when her CRPS was triggered, the only way she could still pay her medical bills is to stay in

However, the average temperature in Arizona is down. about 30 ° C (86 ° F), which means that she lives in the worst possible conditions for her condition.

During the summer months, when the temperature may tip over 100 ° F (38 ° C) Ms. Hansen, she must stay in her room, which is carefully monitored to never exceed 65 ° F (18 ° C).

Although there is no cure for CRPS, it can In remission, Ms. Hansen has tried countless treatments to try to manage the pain levels that she endures.

She said: "I have suffered a lot of treatments since my CRPS, I have done 10 to 15 different nerve blocks, that 's where they m". put under anesthesia.

"I opted for ketamine infusions – in cases where"

However, Ms. Hansen revealed that none of them n '. had managed to fight his pain either.

She added, "At first, it really made me fall. every time I tried a new treatment and that it failed.

"I would become more frustrated and more upset and then [after] about a year from having this illness, I got to accept it.

" So, now I hope a remedy, but at the same time I realize that it is an illness that I will have for the rest of my life. "

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