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A British man who is so sensitive to the sun, his face "fried" when he was out on the outside as a baby was presented with a second hyperrealistic skin to protect him from the elements.
Since he's been diagnosed Alex, 25 years old, has not moved outside on a sunny day – and even on gray days he is wearing a cumbersome mask and a protective visor to block UV rays, reports the Daily Mail
. the BBC Two series has been broadcast in the UK. The Big Life Fix, inventor Zoe Laughlin has designed a hyper-realistic second skin mask – inspired by Alex's resemblance – to give her more freedom.
His mother, Anna, who remembers Alex's diagnosis at the age of a few months after "completely fried" in the sun, says she was "carried away" by Zoe's design, she's created to look exactly like her current face in addition to providing her with vital sun protection.
The condition of Alex means that his skin has a limited ability to repair DNA damage – like that caused by the sun. Her parents were advised to "live at night" after her diagnosis, but her mother found her old hat and visor because she "refused to lock her up".
Prosthetic manufacturers used a special camera that took thousands of images a second to capture a complete image of Alex, which was later downloaded to a computer and printed in 3D
The model was later placed in a plaster to create a mold for the mask, which is silicone with a UV rating of zero – because only a note of one or less is considered safe for Alex.
Two months later, the mask arrived, and Alex and his family were stunned by his realistic appearance. seeing his new mask, Alex simply says, "I did not think it would be possible."
When Alex was only a few months old, a family day ended in disaster when his skin began to blister in the sun. 19659013] His mother said on the show: "You can see on the pictures his face is fried, t fried fried, there was no skin there.His face was burned, his hands were burnt, his legs were burned. "
Anna's father and Alex, John, rushed to A & E, where they were told that he had developed an infection that would disappear
However, when he was informed that he had a xeroderma rare pigmentosum.
The disease means that it is 10,000 more susceptible to UV damage than an average person – and that it is far more likely to develop cancer at some point. was left with learning difficulties and a partial hearing loss, similar to about a third of all those who have been diagnosed with the rare condition.
His parents were advised to keep him inside and take him out only at night, but practical considerations have made this
Anna said, "The doctors told us that the only way sure is to live at night, to sleep during the day, so during the early years we just had curtains drawn, and I was sitting inside crying with him.
"But I thought Well, he will die at three o'clock, so I will do absolutely anything and anything to show him a little bit of the world. I was not ready to lock him up.
She designed and crafted the hat that Alex would wear all his life, but he found it restrictive and he did not provide complete protection from the sun.
"I wish I could be like everyone but I can not help but not be," says Alex.
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