The man who is allergic to the sun is presented with a mask that is an exact replica of his own face



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A British man who is so sensitive to the sun, his face "fried" when he was out on the outside as a baby was presented with a second hyperrealistic skin to protect him from the elements.

Since he's been diagnosed Alex, 25 years old, has not moved outside on a sunny day – and even on gray days he is wearing a cumbersome mask and a protective visor to block UV rays, reports the Daily Mail

. the BBC Two series has been broadcast in the UK. The Big Life Fix, inventor Zoe Laughlin has designed a hyper-realistic second skin mask – inspired by Alex's resemblance – to give her more freedom.

  As a baby, he was diagnosed with Xeroderma pigmentosum after being blistered in the sun. Photo / Delivered
Like a baby, he was diagnosed with Xeroderma pigmentosum after his blistered skin after being in the sun. Photo / Delivered

His mother, Anna, who remembers Alex's diagnosis at the age of a few months after "completely fried" in the sun, says she was "carried away" by Zoe's design, she's created to look exactly like her current face in addition to providing her with vital sun protection.

The condition of Alex means that his skin has a limited ability to repair DNA damage – like that caused by the sun. Her parents were advised to "live at night" after her diagnosis, but her mother found her old hat and visor because she "refused to lock her up".

Prosthetic manufacturers used a special camera that took thousands of images a second to capture a complete image of Alex, which was later downloaded to a computer and printed in 3D

The model was later placed in a plaster to create a mold for the mask, which is silicone with a UV rating of zero – because only a note of one or less is considered safe for Alex.

Two months later, the mask arrived, and Alex and his family were stunned by his realistic appearance. seeing his new mask, Alex simply says, "I did not think it would be possible."

When Alex was only a few months old, a family day ended in disaster when his skin began to blister in the sun. 19659013] His mother said on the show: "You can see on the pictures his face is fried, t fried fried, there was no skin there.His face was burned, his hands were burnt, his legs were burned. "

Anna's father and Alex, John, rushed to A & E, where they were told that he had developed an infection that would disappear

  Photo / Delivered
An emotional Alex (pictured on the show) said that he only wanted to be like everyone else Photo / Provided

However, when he was informed that he had a xeroderma rare pigmentosum.

The disease means that it is 10,000 more susceptible to UV damage than an average person – and that it is far more likely to develop cancer at some point. was left with learning difficulties and a partial hearing loss, similar to about a third of all those who have been diagnosed with the rare condition.

His parents were advised to keep him inside and take him out only at night, but practical considerations have made this

Anna said, "The doctors told us that the only way sure is to live at night, to sleep during the day, so during the early years we just had curtains drawn, and I was sitting inside crying with him.

"But I thought Well, he will die at three o'clock, so I will do absolutely anything and anything to show him a little bit of the world. I was not ready to lock him up.

She designed and crafted the hat that Alex would wear all his life, but he found it restrictive and he did not provide complete protection from the sun.

"I wish I could be like everyone but I can not help but not be," says Alex.

  His mother Anna was advised to keep him indoors during the day and let him out at night to protect Photo / Delivered
It was advised to his mother, Anna, to keep him at inside during the day and only let it out at night to protect your skin. his mother had to carry a UV player to test the UV levels in the sun's rays, as well as the lighting in the room where he was.

When Zoe proposed the idea of ​​a mask to the family, they were skeptical. ready to try anything to make life easier for Alex.

Anna says, "Oh my god, that can work, I did not actually see Alex outside in the light of day [mask] since he was three months old." is like, oh my god, please, 25 years of waiting. "

  The mask was made by a firm that manufactures prosthetics for movies and television
The mask has was made by a company that makes film and Photo / Delivered prosthetics

When Zoe introduced the mask to Alex, his parents were obviously very moved.

Anna said, "I was blown away, I'm glad you tried something that has not been done yet.]" Even in my wildest dreams I would not have dreamed "

WHAT IS XERODERMA PIGMENTOSUM?

Xeroderma pigmentosum (XP) is an inherited disease that causes extreme sensitivity to the sun's UV rays. [19659002

XP is caused by a mutation Genetics

People who suffer from it need complete protection from the sun, including clothing, sunscreen and dark sunglasses.

Ninety percent of patients suffer also:

• Joint pain
• Cognitive problem lems
• Anomalies of the teeth

Because of the high risk of sunburn, skin cancer is extremely common in patients.

The management of the disease can not be gu

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