[ad_1]
The child suffers from a syndrome so rare that there have been only 41 documented cases worldwide.
Jaiden Rogers, a 12-year-old boy from the state of Colorado (United States), suffers from a According to Yahoo News, the hard skin syndrome, also known as facial dystrophy Congenital, is a connective tissue disorder that makes the skin so hard. As a stone Of this rapidly progressing disease, there have been only 41 documented cases in the world since its discovery in the 1970s, including that of this child.
Jaiden has stiff skin syndrome – an extremely rare disease that slowly causes all of her illness. body to harden Visit its GoFundme: https://t.co/SyiscGx3XD https://t.co/ChCSEr2AIM
– GoFundMe (@gofundme) July 19, 2018
The adoptive parents of Jaiden have Six years ago, there were symptoms when they saw "a little lump on the right thigh, just under the skin". The mass continued to grow rapidly and "once the hard calcifications invaded the joint, Jaiden began to lose mobility."
"Your skin looks like stone" and "touch the ceramic top of a kitchen table" said his mother Natalie to the media. The child could be totally immobilized or even die if the disease is not cured.
Jaiden's parents can not cope with the extreme costs that a special one-year treatment in Europe requires, so they launched a fundraising campaign on the Go Fund Me platform. [19659008]! function (f, b, e, v, n, t, s)
{if (f.fbq) returns; n = f.fbq = function () {n.callMethod?
n.callMethod.apply (n, arguments): n.queue.push (arguments)};
if (! f._fbq) f._fbq = n; n.push = n; n.loaded =! 0; n.version = 2.0 & # 39 ;;
n.queue = []; t = b.createElement (e); t.async =! 0;
t.src = v; s = b.getElementsByTagName (e) [0];
s.parentNode.insertBefore (t, s)} (window, document, & quot; script & # 39;
& # 39; https: //connect.facebook.net/en_US/fbevents.js');
fbq (& # 39 ;, & # 39; 1417780911659784 & # 39;);
fbq ("track", "Pageview");
[ad_2]
Source link
