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Alamosa, Colorado.- With great despair, the parents of a 12-year-old boy are fighting the clock, trying to find a cure for his son, who was diagnosed with an illness ] who transformed skin into stone .
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Jaiden Rogers Suffers from "Rigid Skin Syndrome", which consists of in a rapidly developing connective disorder that makes the skin hard.
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As before this terrible disease, we can say that the little Jaiden did not have an easy life: son of a single mother who could not antenerlo, Rogers decided to adopt becoming his legal guardians in 2005, him learning to speak correctly and to make him feel at home, because he was discovered at an early age autistic . ] But the most difficult part started six years ago, when the boy's father, Tim Rogers, noticed a "little lump in Jaiden's right thigh just under the skin".
consult a dermatologist, the couple was concerned that the tumor was still growing. On their website, the couple reports:
In a few weeks, growth was wrapped around Jaiden's right thigh and behind his knee. Once the hard calcifications invaded the joint, Jaiden began to lose mobility
.C is so that the odd disease was diagnosed in the child. This disease was discovered for the first time in the sixties, and the skin of the patient begins to thicken and harden, spreading throughout the body.
Counting Jaiden, only 41 cases were recorded. The world .
The parents of the child had to spend [$ $ 677 thousand of Tim's pension fund and mortgage their home 3 times to be able to pay the medical expenses of chemotherapy that help to slow the progression their disease, and the powerful pain medications that make the baby sleep up to 18 hours a day.
The couple opened a page from Go Fund Me to receive donations to follow the treatment of his son.
The family seeks to raise $ 1.5 million which would cover a year of special stem cell treatment for rare skin diseases in Europe. Currently, they have managed to collect 117 thousand dollars.
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