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I am sure I am not the only one who is surprised by where we are still in this pandemic. There was a point at the start of the summer when it seemed like things were improving to find us a little better but far from “normal”. COVID-19 has changed us in so many ways and in some ways we will never be the same again. I have read many articles and studies over the past 18 months about the impact COVID-19 has had on the disability community that I had not thought about before, although I see a lot in people that I support.
Brigham Young University is currently under study for more information on how the pandemic has specifically affected the autism community. The title of the study is “Sensory Processing and Uncertainty Intolerance in People with Autism During the COVID-19 Pandemic: A Mixed Approach”
They are reaching out to the community for information that will aid in this study and are specifically looking for families with a child or children diagnosed with autism. These families are invited to participate in the study to find out the effects of COVID-19 on children with autism and their families. The study began in February and continues until November.
Participation is done online and can therefore be done with a good Wi-Fi connection and a smartphone or laptop. First, the family will complete an online questionnaire and possibly participate in a Zoom interview.
Participants in Phase 1, which is simply to complete the online survey, will be entered into a raffle to win one of four $ 50 Amazon gift cards. Individuals participating in the Zoom interview will receive compensation at the rate of $ 30 per hour. The most important and long-term benefit, of course, is to help researchers uncover the long-term effects of large-scale uncertain situations on children with autism and their families.
To participate, you can contact the study coordinator, Mollie Bradley, by email at [email protected]
BYU is also seeking participants for another autism study focused on helping diagnose autism earlier and more effectively. They are looking for children between the ages of eight and 18 months who have an older sibling with an autism spectrum disorder or who have no parents with the diagnosis. For more information on this study, contact them at [email protected] or (801) 422.5977.
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