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Lora D & # 39; Alesio remembers the moment when her lips began to turn blue and her breath stopped.
"My heart stopped," says the BBC program Victoria Derbyshire . "I was lifeless, I was dead for five minutes.As far as I know, the doctors worked tirelessly to bring me back to life."
Lora suffered a cardiac arrest, which was quite unexpected if she was only 24 years old.
In the UK alone, it is estimated that 80,000 young Britons have undiagnosed heart problems, according to the country's Heart Foundation. In the absence of treatment, these problems can be fatal. In Brazil, according to Datasus, 596 people aged 20 to 29 years died of acute myocardial infarction in 2016.
In the case of Lora, veterinary nurse, the heart attack occurred spent three years ago. She lost consciousness when she got home from work. She did not know it yet, but she has a heart condition called long QT syndrome, a hereditary condition that affects the heart rate and takes longer to recharge with each beat.
", I said (to my colleague when she turned to me, I was already on the floor and she thought I was joking."
Lora was rescued by the l & rsquo; Emergency team and taken to the hospital, where she spent three days coma.
When he woke up, he cried without stopping. "I was so much confused, "she recalls." You think that only older people fall dead because of heart problems, but not the youngest ones. "At my age, I thought:" No, not at all. " Imagine, I was only 24 years old. "
In the UK, this issue has gained momentum as a result of a new study by the Heart Foundation, according to which 83,000 people between the ages of 15 and 25 could be carriers of the disease. 39, a defective gene ectuous who exposes them to a risk.
Many of these people will never have heart problems, but as this problem is under-diagnosed, others may discover that they are carriers when they suffer from pain. ;cardiac arrest.
Elijah Behr, a doctor at the University of London, said that although inherited heart disease is rare, "if we add all of them together, we are reaching out to a considerable number of people." (19659002) "To the point that 1,500 young people die each year in the United Kingdom from these hereditary ailments, and the challenge is to identify these people and to try to avoid these deaths."
Behr is looking for ways to determine the genetic causes of cardiac arrest in the hope of progress in the prevention of sudden death.
Some doctors advocate that young people undergo tests. but also that we need more research before we can put such ideas into practice.
In 2016, Barry and Gill Wilkinson lost his son Dan, a 24-year-old, who died suddenly during a football game. "The boy led a healthy and active life – he even played in the youth team. A British team.
"He was suffering from a serious heart problem, but nothing indicated to us, nor to us, that there was something wrong," his father said. Twenty-four hours before (19659002) Dan had arrhythmogenic right ventricular cardiomyopathy (CVDA) that weakened the heart wall and could cause cardiac arrest. He lost consciousness playing and his teammates telephoned Barry.
"It's something that shocks you," says Gill, Dan's mother.
Barry wiped his tears as the couple remembered wanting to be able to tell the son "I love you" one last time. Today, they run an NGO that distributes defibrillators for use on amateur football fields. One of them is used to saving the life of a 14-year-old boy who suffered a cardiac arrest while he was playing.
"Happy to be alive"
The young survivor Lora D "Alesio now spends some of her time at
She now has a pacemaker and wears a defibrillator, which can eventually be used to treat heart disease. to save his life.
"I accept the most random invitations from my friends because you never know when (a cardiac arrest) can recur and kill me.I want to live my life fully.I have the chance to be alive. "
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