A young man suffering from rare diseases does not lose sight of his campaign



[ad_1]

Friends of Sales Supervisor Andressa Rodrigues Gasques, 31, are preparing a kitty to prevent her from becoming blind. The girl suffers from a degenerative disease of the retina, called retinitis pigmentosa, which does not heal. On the other hand, there are palliative treatments to slow down the disease. For this, the supervisor needs Lucentis (Ranibizumabe), whose application costs nearly R $ 5,000

. The medical agreement does not cover this treatment and, according to her, the Unified Health System (UAS) does not provide the drug either.

While Andressa lacks time to pay the state for treatment, his friends organized a citt online to raise money so that she could take the least first doses .

To date, just over R $ 8,000 has already been collected, enough to cover almost two doses. She needs at least six apps (three in each eye).

The first applications were financed by Andressa. For that, however, he had to give up his own marriage. "My wedding was planned, I had to cancel it because the money was needed for the drug," she explains

. The supervisor says that she suffers from a lack of vision because she was small. "At the age of four, I had to wear my first two and a half-inch glbades and when I was 23, I was operated on because I was not sure. had already 15 degrees of myopia, "she says

Andressa is delighted to see his friends mobilize for help. "It was very difficult to accept the help of other people because I am a person who never asked anything, I do not like to ask someone, but see all those people who 'help is magnificent! 19659002] The newspaper of the region contacted the health department of the State of São Paulo, which confirmed through its press office that the drug does not have any effect. was not provided by the SUS

(Collaboration: João Pinheiro)

[ad_2]
Source link