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So Paulo, 02 – The three daughters of ninevalda housewife Pereira Macedo, 38, needed a liver transplant. After three periods of waiting and anxiety, all three were successful. The girls, now aged 15, 12 and 10, had to be kept healthy to wait for a compatible donor.
The first case of liver transplantation Lindalva Macedo dos Santos, 15, was born with a history of chronic obstructive pulmonary disease (COPD), in a group of patients with progressive familial intrahepatic cholestasis, performed at the Instituto Criana, Hospital das Clínicas, Faculty of Medicine, Universidade de So Paulo
disease, which causes an accumulation of bile in the liver, compromising the functioning of the organ. When she was 2, she was ill and was taken to a basic health unit (UBS) in the eastern part of the capital. "The doctor said that she was serious and she was referred to Baby Jesus Hospital and then to the hospital clinics." When she was 2, she queued, "recalls the mother
parents are usually donors, but girls did not have this option." In children, between 80% and 90% grafts are given by the father or mother through the graft, when a part of the liver is transplanted, and in this case, there was a particular characteristic. For genetic and clinical reasons, "says Uenis Tannuri, head of pediatric surgery and liver transplantation at the Instituto da Criana
. Only when Lindalva was 8, in 2010, the transplant was practiced. "It was a long operation that moved a lot, but I was not afraid that my other daughters would also have the problem because they were born healthy," he says. she.
The following year, the daughter of Ninivalda, Juliana Macedo dos Santos, now 12 years old, began to be accompanied by the department of hepatology of the hospital. She had itching as early as 2 years old and it is this symptom that helped her to diagnose. "They had different symptoms. It was noticeable in Lindalva because of the swelling in the belly. Juliana started with an itch. It was people who said it was the only way to get it. food allergy, seasoning, but it was not.He did the exams and had the diagnosis "The doctor has already warned that he should undergo a transplant."
C & # 39; The family has queued again to try to find a new place for another girl, while in the meantime, in 2015, Priscila Macedo dos Santos, now 10, started showing a yellowish discolouration, an indication that liver function was not good
In September 2016, the compatible donor appeared for Juliana, she spent more than two months at the hospital, and during that period, Priscilla got worse. "She had a hemorrhage when Juliana was hospitalized and lost a lot of san g ", says the father of the girls, the mason Joelson Pereira dos Santos, 42 years old.
Priscila was able to receive the certificate in March of this year. . The three still have a medication routine: the youngest takes ten medications and the eldest, one, but leads a normal life. Lindalva and Juliana go to school, and the student must return to school after this year's holidays.
Even facing hospital visits for exams and internships, the family room is decorated with photos of the girls. They are recordings in different phases of their lives, but in none of them is the appearance of the one who was once sick. What differs from the people of their age, today, the story of the struggle for life and the diet that follows. "It must be a food without salt and fat, but they are fine," says Ninivalda
Alvio
Santos is relieved that the three have managed to transplant and hide the gratitude of the team medical. "I want God to turn on these doctors. If it was not for them, my daughters would not be here, sometimes we felt defeated, there were a lot of ups and downs, and that was not the case. is something we are talking about, but a story "
Dr. Tannuri, who is also a professor of pediatric surgery and liver transplantation at the Pediatrics Department of the FMUSP, says that the case of the three brothers was a" multiplied challenge. "
" I saw this kind of case with two brothers, but it was the first we had three years ago, since the beginning of the program, our commitment was to control girls so Three sisters survived and were treated in a public hospital. "Transplantations
Currently, out of the 33,154 people waiting for a transplant in the country, 1,289 expect a liver, according to the Ministry of Health.In 2017, there was a 12.1% increase in liver transplants compared to 2016 and a 15.9% increase in procedures with living donors. The information comes from the newspaper
The State of São Paulo
(Paula Felix)
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