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Almost every woman dreams of being a mother someday. The expectation of a child is one of the most important moments for the family, and it was no different for a mother from the state of Washington in the United States called Alicia Barber
Barber tried for four years to get pregnant but could not, until who became pregnant with twins in October 2016. What she and her husband were not expecting, it is that in addition to losing a child to a spontaneous abortion, called "Twin Disappearing Syndrome", the other would be born with an extremely rare disease called "Harlequin Ictiosis."
"I knew something was wrong, I felt that something was wrong all through pregnancy, intuition is a reality", she told CBN News. At seven months of gestation, she received confirmation from doctors that her son, Jamison, would probably not survive because of a genetic disorder.
"They told me that he would probably be stillborn and that if he was born, he would only have 2% Ichthyosis The harlequin is a rare disease that affects one in 500,000 people, according to the National Organization for Rare Diseases in the United States. The disease covers the skin with thick, thick, diamond-shaped patches, separated by deep fissures, causing a lot of pain and suffering, and a constant risk of infection.
The stiffness of the skin compresses the body's movements, "
" They were telling us all to abort.
Faced with extreme gravity, Barber said the doctors had given him two weeks to decide to abort his child. "I wanted a baby and I fought trying to get pregnant for years and it did not matter how he did it," he said. . a handicap or something wrong with that. God does things for a reason and his time is everything. "
Jamison was born in May 2017. After that, Barber went into depression.The shock of reality was too much for her at first.
" It was very, very difficult because it was Was a very limited time that I could see him and spend time with him. "I did not have the right to be a mother," she explains, noting that she realized later that she could not handle the situation without help of God.
She said that her spiritual life was "like a log drifting in the sea". because he did not seek God during the most difficult times, especially during gestation. "Now I do not drift anymore, I know I can not do it without Him," she admits.
Overcoming and Expecting
It's been over a year and Jamison continues to surprise doctors and contrary to all expectations.
"His physiotherapists told us that he would not be too flexible because of the stiffness of the skin.They said they would not try to sit down, or, things like that. "
" The behavior of this little boy about life is so beautiful, he is always happy when he is not in pain or discomfort. "Smiling, laughing , full of energy and full of life despite all the challenges.It's amazing to watch. "
In order to cope with the disease and prevent infections, Jamison needs care and attention. bleach every day. His case has drawn attention to various media in the United States, such as Fox News, USA Today, People Magazine and the New York Post.
The Jamison case served as a testimony to millions of people about how faith gains strength in difficult situations and what is the true meaning of life. Barber's son taught him to be thankful to God, even though everything seems bad:
"I wanted to raise awareness about my son's condition by increasing faith through it, and how we are where we are today. because of God, "she said," I only ask God to give me strength. It's hard, but Jamison's reward for being here is so beautiful. "
For Barber, the greatest lesson of the rare experience with her son was dependence on God, and today she recognizes that we are nothing if we are not in the Lord's presence, and it makes all the difference to the natural challenges that human life presents to us:
"You can not survive without Him Without him through that … I know that Jamison would not be home if I did not did not really trust during the most difficult times.He taught me an abundance of love, patience and kindness that grows day by day.He taught me never to take anything for granted. "
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